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Wednesday, September 20, 2017

~Purpose In The Pain Pt 3~



{ This is Part 3 of a series on my struggle with unexplained/undiagnosed sickness. To catch up, you are welcome to read Part 1 & 2 }



Isaac and I struggle with our health, most of you know that. So many questions and so many tearful prayers. Then I came across 2 Corinthians 12:7-10:


"So to keep me from becoming proud, I was given a thorn in my flesh... Three different times I begged the Lord to take it away. Each time he said, “My grace is all you need. My power works best in weakness.”


So now I am glad to boast about my weaknesses, so that the power of Christ can work through me. That’s why I take pleasure in my weaknesses, and in the insults, hardships, persecutions, and troubles that I suffer for Christ. For when I am weak, then I am strong."


Everyone longs for healing. Especially for your sick child. It's hard. The first part , I could have written. Begging the Lord to take the "thorn in our flesh" away & heal us. I believe the Lord can heal people from sickness and disease. I know of people that have been healed in huge ways and in small ways. I have no doubts this can happen.


But, maybe it's not to happen for everyone, in the way we would like or the way we understand to be "healing". It wasn't to happen for Paul. But God knew why Paul had to have that "thorn" and only He knew what this would do to Paul if  He took it away and healed him. The Lord is kind and good , He loves us so very much, if He is to leave a "thorn" where it is, it must be for a very good reason. One only He knows.


I believe He heals people in various ways. I have prayed countless prayers for healing for myself and Isaac over the years. But this verse makes me think that I've maybe missed something. I don't know "why" we continue to be sick and there are 100's of possibilities. Perhaps the answer is complicated..or perhaps it's simple. Perhaps for reasons only He knows... we continue to have these "thorns".  


It makes me wonder...like Paul....would I , too, become proud if I had no illness to keep me humble? Would Isaac? What could the purpose be in all of this? Who would we be ,or become, if we didn't have these "thorns"? Is it to help us be compassionate and kind to those with similar struggles? Is it to encourage others in some way? Being ill since birth has definitely helped me to be compassionate and caring to those who suffer with illness. I wish there could be another way...but as Jesus prayed for God to take away his cup of suffering to come, He also prayed "Your will be done".


For whatever reason, my weary heart and soul has found some strange kind of peace in reading this today. Why in the world would I find peace in thinking perhaps God's going to keep our "thorns" where they are like He did to Paul?  I don't want us to be sick and I'll continue to do everything I can to find answers and help for us. This verse and even the odd peace I feel doesn't make it easier, but I'm praying that if that is what He wants, that He can change our hearts so we can "boast and take pleasure in our weakness" So HIS power can be make perfect in OUR weakness.


I know God does not want us to suffer and does not take pleasure in our pain. And even after reading this , I will still continue to pray for and believe in healing. But I'll also think of this verse more often and while we "wait patiently for the Lord" to heal us and/or bring us to answers...I pray we can also see our suffering in the way Paul did.


I don't now about you, but I often pay more attention to the times in the Bible Jesus healed people immediately, he cast out demons on the spot, people rose from death to life at the touch of his hand or sound of his voice. He healed people based on their faith and belief alone. One lady simply touched his robe and was healed! I have found so much hope in these stories and have believed wholeheartedly He can and will heal in the same way today.


But...I've not paid as much attention to verses like this...stories like Pauls...and others. Job is another one. Great suffering. Job did eventually see deliverance but he went through literal hell on earth first. We don't understand why..but God says His ways are higher then our ways, His thoughts HIGHER then ours. We cannot ever understand the HIGH ways of our creator.

I clung to the healing testimonies and words of Christ, but simply read and moved on from Pauls testimony of the thorn in his flesh and how he dealt with it. How he accepted it and looked at it differently after begging for healing. Did he give up on God when God didn't "answer" his request for healing? No...he asked...he prayed..he listened to the Lord and then he allowed God to change his heart. He also CHOSE to embrace this thorn and then work with it! He let his struggle transform him and also allow it to grow his faith even bigger and deeper! He never gave up. He believed, like I do and many of us do, that God IS listening to us, He IS healing in ways we dont see feel or understand , and He IS GOOD ...if He is leaving this thorn, there must be a good reason. 

Here's another one that stood out to me today and has made me think differently about our struggle with our health:

Psalm 40
"I waited patiently for the Lord;
    he turned to me and heard my cry.
He lifted me out of the slimy pit,
    out of the mud and mire;
he set my feet on a rock
    and gave me a firm place to stand.
He put a new song in my mouth,
    a hymn of praise to our God."



Perhaps this Psalm is speaking of a struggle that God healed him from. Or perhaps it speaks of a struggle, that God did not deliver him from , but changed his heart and delivered /healed him in a different way. In his mind/heart/persective. To where, like Paul, he can praise God in the midst of pain and hardship.



Whatever the reason, whatever is going to happen, I pray God gives us hearts and attitudes like Paul, David, and Jesus. We cry out for healing, but we know God's grace is sufficient for us and His power is made perfect in our weakness. We wait Patiently for the Lord to answer, as he lifts us up out of the pit of despair and gives us hope. We can stand on His firm foundation no matter what trials come our way. He will give us new songs of praise and perhaps some will come to put their trust in Him as a result of our hardship and struggle. Perhaps He leaves the "thorns" for that reason alone.  And like Jesus prayed, God we ask that you take this cup of suffering from us, but your will be done , not ours. If you will these thorns Lord, then help us to have peace, joy and trust through it.



If you know someone who is sick quite often or has a loved one that suffers, take the time to listen to them. Give them a hug, pray with them, be gentle and understanding. You may be tempted to judge them, but no one knows the true reasons a person is suffering. Perhaps you are blessed to not struggle in this way, but they do, for whatever reason. Having compassionate and loving ears to listen, arms to hug, hearts to love...truly comforts and lifts up those who are weary and burdened. A simple text, message, email or phone call to check in and see how they are doing goes a long way. You may not be able to "relate" and that's ok..but it's a lonely world when you suffer repeatedly. Reaching out in some way can make a huge difference. 


And if, like me and Isaac, you suffer continuously with some unknown sickness, or you know someone who does....have faith, trust , and hope ...believe that He can heal you. Pray for healing. Do what you can to get an answer. But also consider that He may allow the "thorn" you are dealing with...for reasons only He knows. Trust Him in this! It's hard, but let's follow Pauls lead and never give up. One day, our suffering will be over. What a glorious day that will be. Until then, let's encourage one another and build each other up, trusting in the Lord and His higher ways , together. <3

Friday, August 11, 2017

~Purpose In The Pain Pt 2~

{This is an update to my original blog post Purpose In The Pain.}
 
So interesting to read my words from 2009...and realize not much has changed over the years, until recently....

 
" A little frustrated after contacting an allergist to see about having an allergy test done for my hives, only to have them tell me majority of the time the results come back fine and they don't know why the hives happen. Makes me feel like the doctor is giving up on me before even seeing me??? Considering just seeing a naturopathic doctor for my ailments since regular doctors keep saying "we dont know..."

 
Since this post, I have pursued many doctors. All tried their best to help me. Lots of tests, an allergy test, etc...only to have all of them tell me they don't know what is causing this. My allergist, after many tests and visits, told me recently..."Well, I have an answer that no doctor likes to give...I don't know what is causing this severe reaction". sigh. The next step is to see an autoimmune doctor. There have been lots of theories over the years from doctors, friends, family, my own brain....so many things "could be" causing this.. All of which could be legitimate but no real diagnoses. It's difficult to live with a debilitating "illness" and have no idea what it is or why it's happening.

 
 
In case you were not able to read my original post:
I started with chronic severe hives in summer of 2008 , literally out of no where. I had plenty of health issues growing up, mainly with my stomach. Never severe hives that put me in the ER. I have been on an {almost} 10 year journey and struggle with this. Carrying a "med kit" of medications and an ep-pen with me everywhere I go, to take if an episode flares up.

 
My episodes would happen once every few months. Sometimes longer stretches. Sometimes shorter. Lots of food logs and journals trying to make a connection. Just when I think I have connected the dots...it changes and we start over. Since January my episodes have been once a month. Since June, twice a month. The last episode in July, I hit rock bottom. Not only do I have to rest for 2-3 days in a Benadryl fog , I also have to take high doses of steroids that leave me feeling ill with side effects. For about 1 week I am not able to function normally. Having this happen once a month was tough, but twice a month was too much. I was absolutely desperate for help.  I have had to cancel and miss so many things over the last 9 years.  It's frustrating, disappointing and even embarrassing at times.  "Sorry, I can't make it, I'm sick again".  Something had to change.

 
That's when a light bulb went off in my head after much time in prayer, asking God to please heal me or lead me to the right person, doctor , etc that can help me. After all, He created me. He knows exactly what is going on.

 
In my 2009 post I mentioned pursuing a naturopathic doctor for help. A few years ago after a friend told me about one locally that helped her friend...I set up an appointment. He helped me with some issues at the time and I started to feel better. Why I stopped going to him I'm not sure, but I set up another appointment for as soon as possible.

 
I was able to get in to see him recently. He spoke so much clarity into my situation with hives and with anxiety, it was a breath of fresh air. I was in tears as he explained so simply, yet so profoundly , why my body is going through this. I finally have a "why" and the help I have desperately needed. I have HOPE. I have RELIEF that this mysterious issue will not control my life anymore.

 
Years ago I had taken a histamine supplement that helped with the hives. I ran out and never refilled it. The hives weren't the main issue at that point and I forgot about the supplement until now. Since starting that again, I have had NO episodes!! By now I should have broken out. I felt one coming on recently, so I took more histamine supplement and never broke out fully. This is truly amazing! I have tears typing this. When you are at rock bottom , hope is gone, feeling so desperate for someone to help you...it's a dark place to be. To have hope restored is a feeling I cannot describe.

 
I had taken zyrtec and benahdryl per my allergists request and it did not stop the hives. No matter how much I took, I always ended up taking prednisone. The last episode I felt coming on recently, I did not have to take the steroid!! This is huge! One of my biggest issues was having to take so much prednisone. It not only made me feel sick, but is not good to take long term. I wanted so badly to be able to stop taking it...and I'm finally in that place!

 
What I have learned from my experience is that you have to be your own advocate. If you aren't getting the answers you need, keep pursuing , keeping pushing. Do not give up on yourself. Find something to motivate you to get up and get answers. If not for yourself, for your spouse, family, or children.  My husband & kids were my top motivation along with wanting to just feel better. I am a joyful person and I love life! Being held down & held back by illness is not something I'm going to settle for. I was close to giving up and accepting my fate to be sick with this forever, until that light bulb went off. I needed to dig deep and try every avenue.

 
 
Seeing my naturopath was my last hope. I wanted to at least see if he had any idea or could help at all before seeing the autoimmune doctor. It's not a bad thing to see the autoimmune doctor and if I end up sick again , that is my next step. But for now, I feel I'm at a good place and on a good path. I am forever grateful for all that my doctors tried to do to help me. Sometimes they can find the answer and solution. Other times they cannot. I prefer treating things as natural as possible if I can...because side effects are tough to deal with. To have a natural solution is a relief.

 
Sometimes you need to take medications, I am not against that. But sometimes you don't. I'm thankful in this case, for now , I don't need to. In my pursuit for an answer I went to regular medical doctors, my allergist and will consider an autoimmune specialist if needed. I also felt to make sure I covered all bases, I needed to see my naturopath as well. For me, it felt like a well -rounded approach to my health. Gather everyone's expertise and ideas, and see what conclusion we can come too.  My naturopath was the one able to give me something that really helped.

 
After almost 10 years of struggle, I think , I HOPE, I'm finally going to be in control of this { instead of it controlling me} and hive free.

 
I also learned that God chooses to heal in various ways. Sometimes He will take something away immediately. There are countless stories of this happening to people. A miraculous unexplainable healing. I absolutely believe He can do that and have witnessed it myself. At the same time, only He knows how or why He heals immediately sometimes and not others. Sometimes He will heal you through the expertise He has given someone else. Maybe that doctor or individual needs to know they have value and worth in helping someone. That their many years of education, time, money and hard work are not wasted. Who knows. We may never know. But we have to trust. He knows. He will answer. He will heal in some way.

 
I was begging God for help ....and He answered.
 
Thank you for taking the time to read my story. Thank you to those who have prayed and offered help and advice. If you are at rock bottom like me and would like to know more about how I am treating my hives and anxiety, please comment and I will be in touch. I'm not selling or promoting anything. I simply want to help people who may be in a similar place as I was.

Wednesday, July 19, 2017

~Purpose In The Pain~



Sometimes you have to go to a place you don't want to be, to end up in the place God wants you to be."- Christine Cain

I'm in a place I don't want to be.
 
I've been in a season of asking God "why me" concerning my health. Not gonna lie, it's been tough. Almost 10 years struggling with a certain health issue can make one weary. I just came through a 5 day battle with this issue and found myself on the verge of despair at times. I know that sounds dramatic , but it's true. When you fight something so long, something that stops your life for a week, causes you to take medication that has side effects that make you feel unwell, causes you to be "ineffective" as wife and Mom...It's hard. When you have been to various doctors to get a diagnosis , and still have no reason "why" it is happening...you become very frustrated and weary. That was me the last few days fighting this. Anyone that is struggling with health issues, I understand.
 
I see you. I hear you.
 
I'm no stranger to a "sick body". Since I was a baby I've had stomach/digestive problems. Many of my classmates probably remember me this way. Sick in school, missing school, etc etc. I was "the sick girl" for a long time. Lots of doctors visits and procedures to find out what is making this little girl so sick. Their conclusion was "Ulcers" because they really didn't know what else it was. We treated those ulcers as best we could.

"Why Me?"
 
Things got pretty bad as a young adult and I was checked again to see if there was another cause. I was diagnosed with a "diseased gallbladder". That was taken out and I thought maybe now I would feel better. I was told by the surgeon, "We saw something else in there, you need to see another doctor and have this checked out."

"Why Me?"

 
I ignored the advice for a few years because I wasn't as sick anymore. And to be honest, I was scared to find out what this "thing" was. My gallbladder removal did not completely solve my stomach pain, but it was a little better. So I went on with life. Until my stomach issues came back severely while in Massage School. Many of my Massage classmates may remember me "sick". My stubborn self finally was pushed by my fiancé (now husband) and my Mom to get the "mysterious thing" looked at.

"Why Me?"
 
 
That resulted in needing to have a large choledocal cyst removed from my bile duct that connects to my liver. This cyst had a high chance of becoming cancer some day and it's location would likely result in pancreatic/liver cancer.  Grateful this cyst was found "accidentally" is an understatement. And I believe I had my gallbladder removed for a reason, so that this cyst would be discovered. But, I found myself still asking...

"Why Me?"

 
8 hours later my bile duct was completely removed and a new one created using other parts of my digestive system. I'm not "hooked up" the same as I was originally and it's a miracle that the doctors could do that. It's a very rare situation so prognoses was largely unknown, but mostly positive. There aren't many people that have had this cyst or surgery and each one ended up with different results. 11 years post surgery and I'm mostly doing well. I'm thankful it was removed and to have had 2 of the BEST surgeons for this type of surgery right at Hershey Hospital. They are now both in North Carolina , the timing for it all was perfect. I'm definitely thankful and blessed.

 
That surgery definitely helped, but wasn't the answer I thought it was. I still had stomach issues for years after. Thankfully I do not as often these days but, as life would have it, I now have to deal with another health issue that came on suddenly 9 years ago.

"Why Me?"
And you would think after 35 years of fighting sickness that I would be stronger...not weaker. Maybe I'm stronger in ways I don't realize, but I feel weaker. Many tears have been shed and prayers prayed. 

"Why Me?"
 
I know that here in this life, in these bodies, we will never have perfect health. It would be nice though to have a season of good health. A few years maybe. Or even a "diagnoses" as to why this is happening.
 
 
Back to where I started, I'm in a place I don't want to be. A season of asking "Why Me".  I was weary the past few days. Just fed up. Maybe you can relate.
 

"Why is God allowing this to happen?!"
 
 "Why hasn't He given me an answer, He knows why! Why is He keeping me in the dark about this?!"

 "I know He loves me and cares about me, so why is He just sitting there watching me suffer like this? Why is He putting my kids through this?!"

 "Does He care about me at all?!"
 
"WHAT IS THE PURPOSE OF ALL OF THIS GOD?!!!"
 
 
I know those are brutally honest questions. Maybe hard for some to read, but I imagine God wasn't surprised at all. I imagine He was pleased I was finally releasing all of that pent up frustration. I imagine after I was done, He might have said something like "Ok, good. Are you ready to listen now?"  I don't think He was offended by my questions , because it was not long after those, that He spoke truth into my heart.

 
 
 In my tear filled discussion with Matt, he spoke gentle reminders to me that I feel were God-given.

 
"Megs, I know this is hard. It's hard to watch you so sick. But, what if there is a reason for all of this that we just don't know yet. What if some day we're going to see the reason and it's all going to make sense"


 
I was asking the right question, the wrong way.

 
I was asking "Why Me?" "Why is this happening to me, what is the purpose of this?!" in tears of confusion, frustration and despair. I was tired of being sick and didn't understand why God would allow me to be tormented with this problem so much.
 
But in an instant, that question was transformed...


"Why Me" turned into..
"Why are you allowing this to happen to me? What is the purpose of this?" Asked in true wonder and curiosity. Asked in peace. Asked in love.

 
Matt reminded me that yes, it's hard right now. Really hard. But we only see "right now". We can't see months or years down the road how this will work out. We can't imagine how my pain and struggle right now might help someone some day. Someone , possibly my own child or even a grandchild, may end up very sick like me. But, I've done the hard work. I've struggled and fought...so that I can help whoever that is one day to have an answer and relief sooner then I did.

 
Those words flooded me with a peace that surpasses comprehension. Everything in me calmed.
I don't know "WHY" right now I'm allowed to suffer for a time. But my perspective has shifted. It doesn't mean it's going to be easy if and when another episode comes. But, if my suffering will help someone one day, possibly my own family member, then I will keep suffering and keep fighting for an answer.

 
I now am ready to do whatever I have to do to figure out what is causing my body to go through this. To have purpose in the pain is incredibly motivating. To know that if I can get to the bottom of this , no matter how long I have to suffer, no matter how many doctors I have to see..if it could help someone else down the road, then it is worth it.
 
I now look at this problem through the lens of "What if".
 
*What if one day my grandchild is going to have the same problems.
*What if I didn't give it my all and fight to find an answer and solution...and my grandchild will have to suffer.
*What if I push through the pain now and keep digging, if not for a "diagnosis" at least for an answer to help take away the symptoms, to make them manageable and easier to live with. And in turn, my grandchild will not have to suffer because "Grandma has the same thing and this is what she found to be helpful".
*What if I help more then one person some day?
*What if my suffering and my pain turned into a passion that could end up helping many people struggling in the same way?
*What if I CHOOSE to use my suffering and pain to do GOOD in this world, instead of staying stuck in the endless cycle of self pity and despair (that is very easy to get stuck in).
 
The God I love does not allow us to just suffer with no reason or purpose. I was reminded of that. He's not going to let me go through this for nothing. Something will come from this. I don't know what that is yet or when, but I'm more hopeful about the future now. I will keep working hard until then.
 
I'm passionate about living as natural as possible, though I don't always do it perfectly. Massage therapy is one way I can help people to deal with pain and stress naturally. I've also been passionate for a long time about nutrition and how food plays a role in our health/disease. I've been contemplating taking a certain path for a few years, back and forth about it. Unsure if I should spend the time and money, or if it's right for me.
 
 
This recent flare up with my health has been a game changer. I'm confident now about my next step.
 
Everything I have gone through regarding my health issues over the years, has led me to this point. And perhaps I wouldn't be as passionate about it , or even care, if I wouldn't personally struggle with my own health.
 
Sometimes the greatest motivator for change is going through it yourself ...and sometimes you find your calling in the middle of the struggle.
 
I end with encouragement to those struggling in any capacity. It stinks. Period. Allow yourself to go through those emotions. And then consider, like I did, changing your question of WHY ME to...Why have you let me have this burden? What do you want me to do with this?

 
"Why me?" Same question, different tone and perspective.
 
 
And consider asking "What if"  What if YOUR struggle , your burden is for a reason. What if your struggle is going to motivate you to take a step that is going to be LIFE CHANGING for someone else one day. {And for you as well!}

 
Remember that His POWER is made perfect in our weakness. And that He will always turn any bad situation around for GOOD for those who love Him.
"Sometimes you have to go to a place you don't want to be, to end up in the place God wants you to be"- Christine Cain
 
What place are you in , that you don't want to be? And what place might that lead to, that God wants you to be?



**For those who are wondering what health issue I am suffering with - It has no name yet but  Severe
Chronic Hives seems to be the closest label I can give it. This is a full body severe  "rash" , accompanied with severe muscle pain all over (the muscle pain usually comes first , then the hives). This has landed me in the ER a few times, closing my throat once to which I was given an Epi-Pen that I still keep on me , but thankfully haven't had to use it. I get them inside my body and everywhere.. My ENTIRE body is effected, not one area left untouched by this monster. It causes my hands and feet to burn and swell to where I can not walk or do anything with my hands. Thankfully , steroids are my "answer"  right now when an episode flares up. But they are not good to take long term, and they leave me feeling very sick as well. They take care of the outbreak, but make me ill in other ways.

Some people get a fast and easy answer to their symptoms. They find out they have illness abc and can treat it easily with xyz. I'm in the group who cannot find a cause or diagnosis. No answer. I've had allergy testing and I'm under the care currently of my doctor and allergist. I've seen many doctors over the years, none of which can give me any clue as to what it could be. Nothing showed up on allergy testing that would cause a severe full body outbreak . 

So I'm left with many questions. I'm at a crossroads and I have two choices:

1) Accept this is my life, keep taking steroids and try to live with it. 
 2) Let this motivate me to push further, dig deeper, see a variety of doctors (including a naturopath) until I find relief or an answer. I may never know the name of it, or what is causing it, but if I can find freedom and relief even through {especially through} natural means...I am open to anything at this point.

If you have a similar illness or know someone who does, please reach out to me. I'd love to talk and see if we can help each other.